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Living Well with
Lupus
is something I have tried to do for many years now. HOWEVER What I didn't realize was that hiding how sick I REALLY was each time I went to my DR. forced him to be under the impression I was stable (because I didn't want to be put back on steroids and anti-malarials) - SEE BEV in 1988 on Steroids/Antimalarials and thus when I applied for CPP Disability I was turned down twice as the only info my Dr. had was that he thought I was stable because I wasn't complaining to him (for fear of meds again). SO although the key to Living well with Lupus is to not dwell on the pain and symptoms it's necessary for you to tell your Dr. EVERY symptom you have EVERY time you go see one. (Write them all down). THE KEY TO SUCCESS IS
DON'T EXCESS!
*
The LUPUS SONG I wrote and
recorded OTHER LUPUS LINKS *
LUPUS 1st RESPONSE INFO |
SMITHS FALLS LUPUS SUPPORT GROUP
Smiths Falls, ONTARIO CANADA has been running a Support Group for over 20 years now! The group focus is on LIVING WELL with LUPUS! For More information contact: Smiths Falls Lupus Support Group P.O. Box 78 Smiths Falls, ON. K7A 4S9 (613)284-8446 GET REFERRED! Find your local LUPUS CLINIC! Ottawa- RIVERSIDE HOSP. |
The
more common symptoms of Lupus are:
1.Pain in the joints of
the hands, arms, shoulders, feet, legs, hips or jaw which may move from
joint to joint and may be accompanied by swelling, redness and
heat
2. A red rash across the upper cheeks and over the bridge of the nose 3. An unusual and excessive reaction to sunlight 4. A red scaly rash on the face, scalp, ears, arms or chest 5.Small,
usually painless, sores found on the
moist lining of
the nose and mouth
6.Chest
pain that worsens when breathing in or
lying down
7.Weight
gain and swelling of the feet and legs
which is caused by decrease in kidney function
8.Seizures
or severe mental illness
9. A
decrease in the number of red or
white blood cells or platelets
10.Presence
of certain factors in
the blood,
specifically the LE cell, anti-native DNA auto antibodies, anti-Sm
auto antibodies or a positive test for syphilis. (A falsely
positive syphilis test indicates an abnormality in the immune response.
There is no relationship between lupus and venereal diseases.)
11.
Presence of antinuclear
antibodies (ANA) in the blood
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| Living WELL with Lupus
Avoidance of excessive sun exposure and regular application of sun screens. Regular exercise to prevent muscle weakness and fatigue. Eat a well balanced diet and avoid fad diets. Obtain adequate restful sleep Alleviate the effects of stress with support groups, member organizations, concealing, and talking with family and friends. Eliminate negative habits such as smoking, excessive alcohol, not taking prescribed medication in correct amounts, and postponing regular medical check-ups. Learn about Lupus and it's management. Consult a physician about birth control and the timing of pregnancy, (I have had three sons after I was told not to have any). Use appropriate judgment about complimentary therapies. Be positive, have hope, and find joy in your life.. Find a good Dr. Or a Lupus Clinic. Find a Support Group..... BREATHE.... YOUR NOT ALONE!  
 
Lupuscanada.com |
My Favorite Links!